Young-Onset Dementia inobata vanhu vanopfuura 1200

Vanopfuura chiuru vanhu vakabatwa ne frontotemporal degeneration (FTD), dementia yakajairika pasi pemakore makumi matanhatu, vakaungana kuti vabatane, vadzidze, uye vabatane nenharaunda inonzwisisa chirwere ichi paAssociation for Frontotemporal Degeneration's (AFTD) yekutanga-yakasanganiswa Dzidzo. Musangano, neChishanu, Kubvumbi 60.              

Vanhu vakaonekwa vaine FTD, vanochengetana navo, vachengeti, vaongorori, vashandi vehutano, uye nyanzvi dzeindasitiri vakapinda Musangano Wedzidzo wa2022, vese paBWI Airport Marriott padyo neBaltimore, pamwe chete. Vanoda kusvika mazana maviri vanhu vakapinda muBaltimore kwekutanga mu-munhu musangano chiitiko kubva 200, nepo vanopfuura chiuru vakanyoresa kubva ku2019 nyika dzakasiyana vakabatana kuburikidza nelivestream.

Zuva iri raive nemharidzo dzinotarisa padanho richangoburwa mukutsvagisa kweFTD, ruzivo rwakasiyana rweFTD rwekuchengetana, uye mutauro wedementia, wakaunzwa nenyanzvi munharaunda yeFTD/dementia. Vese vari vaviri-mu-munhu uye chaiwo vakapinda vakakwanisa kutora chikamu mune inopindirana breakout zvikamu zvakatora zvakadzama kutarisa kwezvinhu zvakakosha zverwendo rweFTD.

AFTD's Persons neFTD Advisory Council, boka revanhu vanogara neFTD vanobatsira kuzivisa basa reAFTD, vakagovana maonero avo ekurarama nechirwere. Gare gare, nhengo yeAFTD Board, Rita Choula, MA, mutungamiriri wevachengeti paAARP Public Policy Institute, akapa hurukuro huru yemusangano, achigovera rwendo rwaamai vake neFTD uye kuti mhuri yake yakafambisa sei chiitiko ichi. Ms. Choula vakatumira chikumbiro kuvanhu uye vanhu vakabatwa neFTD kuti “vashinge” mukutsigira kuchengetwa, kune vadikanwi vavo uye ivo pachavo.

Muvambi weAFTD, Helen-Ann Comstock, CEO weAFTD, Susan LJ Dickinson, uye sachigaro weAFTD Board David Pfeifer vakataura mashoko ekuvhara musangano uyu, mavakaratidza nhoroondo yesangano sezvo AFTD yava kusvika kusvitsa kwayo makore makumi maviri.

Vatauri vakawedzerwa pachiitiko chegore rino vaisanganisira nhengo yeAFTD Medical Advisory Council Chiadi Onike, MD, MHS; David Irwin, MD, muongorori mukuru wePenn Digital Neuropathology Lab; Tania Gendron, PhD, weMayo Clinic muFlorida; Angela Taylor, mutungamiri mukuru wekutsvakurudza uye kutsigira paLewy Body Dementia Association; uye Laynie Dratch, ScM, CGC, yeYunivhesiti yePennsylvania yeFTD Center.