Duchenne Muscular Dystrophy (DMD) chirwere chisingawanzoitiki muscular degenerative chinobata 16 kubva pavana 100,000 XNUMX voga voga pagore. Iyo inoratidzirwa nemhasuru uye skeletal kushaya simba kunowedzera nekufamba kwenguva uye kazhinji kunoitika kuvakomana.
Zvinosuruvarisa, hapana mushonga weDMD, zvisinei, kune marapiro ekubatsira zviratidzo zvechirwere zvakadai sematambudziko emwoyo nemapapu uye kudiwa kwewiricheya. Vakomana vechidiki vazhinji vakaonekwa vaine DMD vane tarisiro yehupenyu inosvika makore makumi maviri nemanomwe.
Muvambi we JAR yeTariro, James Raffone, ane mwanakomana, James Anthony, ane DMD, uye akasika sangano iri kuti rizivise uye riunganidze zvipo kuitira kuti rimwe zuva vawane mushonga. Parizvino, Raffone apedza zviitiko zvakadai sekuita zviuru zvekupusha uye kumhanya zviuru zvemamaira kukwidza mari, asi nguva dziri kuchinja.
Zviri kuramba zvichioma kuita kuti vanhu vape mupiro - vaida chimwe chinhu chikuru.
Ndosaka baba ava vari kutora danho rakakura chaizvo kuunza DMD mupfungwa dzevanhu uye netariro uye pakupedzisira zvikwama zvavo nekukwira Mt. Everest. Achaenda kuKathmandu nevaanoshanda navo Matthew Scarfo naDillon Doeden mukupera kwaApril.
Vachaungana nedzimwe mhuri dzine vanakomana vane Duchenne Muscular Dystrophy. MuKathmandu moga, DMD yakatora upenyu hwevana makumi manomwe mumakore gumi nemashanu apfuura, uye mhuri idzi dzine chido chekugovana chero zviwanikwa zvadzinazvo pamwe chete neruzivo nezve kurapwa kweDMD. Mushure memusangano wemhuri, rwendo rwakaoma ruchatanga.
Raffone, Doeden, uye Scarfo vachabva vatanga rwendo rwemazuva gumi nemaviri rwuchavatora kubva mumusasa wavo wepasi paMt. Everest kusvika pakakwirira mamita 12. Chinangwa ndechekutsvaga $17,598 iyo ichaenda kuferefeta mushonga mutsva wekurapa DMD. Ongororo yekiriniki paUniversity yeFlorida iri kupihwa mari nevarwere umo mari ichaunganirwa ichaenda kumadhora miriyoni imwe chete nechidimbu inodiwa kuti paitwe ongororo yevarwere gumi nevaviri.
Muvambi weJAR of Hope akasarudza Mt. Everest nokuda kwezvikonzero zviviri. Imwe, vaida chimwe chinhu chikuru kuti vaunganidze mari yakawanda, uye yechipiri, vanoda kukudza vana vakanga vasingambotarisiri kukwira gomo guru.
Parizvino, Raffone nesangano rake vakaunganidza mari inosvika mazana mapfumbamwe emamiriyoni emadhora iyo yaenda kunobatsira mhuri uye nekutsvaga.
#duchennemusculardystrophy
#mteverest
ZVOKUBVA MUNYAYA INO:
- The founder of JAR of Hope, James Raffone, has a son, James Anthony, who has DMD, and he created this organization to raise awareness and garner donations so that one day they may find a cure.
- One, they needed something big to raise a large amount of money, and two, they want to honor the children who could never hope to climb the mighty mountain.
- Sadly, there is no cure for DMD, however, there are treatments to help with symptoms of the disease such as heart and lung issues and the need for a wheelchair.
